Protected: Flaking out begins. I should have known….

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I hate this layout. I will be switching …

I hate this layout. I will be switching back to the old one.

Anyway, round 61 was a nightmare. The yeast was horrible. The high dose of OLE caused more yeast than I could manage. We stopped the round early Sunday. She is much better now. I found some raw organic apple cider vinegar at Bulk Barn and have been putting it in her Apple juice! It’s really helping with yeast and making her gut more alkaline.

I am also morphing her back onto the gf diet. Uggh. Don’t want to at all, but David wants this. Clara will be gf for the most part too.

Round 61 begins! Not a great start to th…

Round 61 begins! Not a great start to the day for Ruby. Clara keeps asking for Meme and when she’s going to see Meme. I think she misses her Meme days. Not sure what to tell her, she’s 2. I’m going to try and get Clara out more and David can stay home with Ruby. I feel bad for her and miss Meme too!

Naptime here. I hope the rest of the day goes well.

Home Alone

Well, it looks like David will be going to Sudbury for the holidays. He has been offered 2 weeks of work at CBC up there and he’s taking it. So it’s just the girls and me for 2 weeks with no car. Should be interesting. My mom lives 45 minutes away, so I will have to skip Christmas dinner there. It’s no big deal, I can make dinner for me and the girls here. I am just a bit worried about getting the kids out during the two weeks and getting groceries. I will have no car and can’t take two kids shopping alone. I’m sure I’ll figure this out.

Our respite doesn’t start until March. IBI starts in January. I will have a ton of help in the new year, but I wish I had that stuff now. My mom will still be coming on Tuesdays, but I can’t drive her van because it’s a leased van. Uggh!

David will be working at the CBC radio here in Windsor after all. He just heard back from the station manager emailed him and asked him to come in to fill out forms. He’s there now. He also has an opportunity for another TV station here in town, but that is not until January.

The woman from respite services came over today and told us about all of the services in Windsor. Wow, so many things for Ruby. Sudbury was nothing like this. They even have “autism movie night” at one of the theaters here. I have to find out more because we need things to do with Ruby. We also found out that we can use the respite money for riding therapy. I have wanted to try the riding therapy for a while, so maybe in the summer I can. So many services here for her I can’t write about all of them!

I can’t believe I forgot to mention this, but two days ago Ruby learned how to use the computer mouse all on her own! I tried and tried to show her how to click the mouse and she just never paid (or seemed to) attention to what I was doing. Suddenly, she just started clicking around with it and playing games on her own. She has been having so much fun playing online games by herself for the past couple of days. This opens up so much for Ruby. I can get her learning games now! I’ll get a picture of this soon!

Round 60 and Socializing

Ruby has been very social with my family. I’ve actually never seen her this social with anyone so soon. It seems natural for her. It took Monica about 2 years to get this. This is great improvement for her. I noticed yesterday after giving her chelation dose that her cheeks got red and she was sweating. I think that dose might have been a bit bigger than the other doses. She was stimming a bit more, but she was great. She was interacting, reading, talking, being affectionate, initiating play and dancing with my dad and step mother.

So, I do think higher doses help Ruby. We’re moving her up to 22.5mg of both ALA and DMSA next weekend. Ruby is 47lbs now so this is her top dose according to AC chelation protocol.

We took the girls to a park this morning. Normally, Ruby would have major issues with transitioning from the van to the park. Today, no issues at all. She got out and ran around laughing. She even climbed up onto the jungle gym stuff which she never normally does. She wanted to go down the slide, but just couldn’t bring herself to do it. She laughed when I asked her to go down, normally she would scream over something like that. She also left the park with no screaming at all. So, I am also raising her OLE on Monday. It’s obviously killing something.

IBI/ABA Assessment

David went to the IBI assessment yesterday. It was a full day, so it was better that he went. My mom comes over every Tuesday to play with the kids. I like the predictability of her coming on Tuesdays. I had Tuesday mornings to myself in Sudbury and I miss that. So, my mom coming is great. The girls have so much fun with her. Ruby is also a different kid at home. She is sensory overloaded when we visit.

So, the IBI/ABA assessment was pretty amazing. This program is offered in a handful of cities and we are lucky enough to have found it in Windsor. I think the only reason it is in Windsor is because it is now run out of London.

Someone will be coming over to assess. Not just assess Ruby, but assess how we live and how we work with Ruby. There is a certain amount of hours for that. The therapy is then done in our home! We don’t have to take her anywhere! They also work with her in the community. We can take her shopping, to play centers, restaurants and set up playdates. The therapist comes with us! This teaches Ruby about real life rather than sitting in a cubicle all day. I am still in shock over this. Oh and get this, they even help organize birthday parties!

They will also go to the grandparents homes and work with the grandparents if they want to. They will teach them how to interact with Ruby. My mom is into this and I’m so happy about that. She will continue to come here on Tuesdays as well and we will all work with the therapist. This is all in the best interest of Ruby. This program is just amazing to me. I haven’t been to a restaurant in 5 years because Ruby cannot sit to eat in one. She doesn’t understand them. I don’t think normal families realize this stuff. We can’t just pop Ruby into the car and take her shopping, something so many take for granted.

The biggest news is Ruby is at the top of the list. So, I think she will be starting in January. They will do the first 6 weeks as fun only. No pressure and no demands placed on her. They want to make it a fun experience for Ruby and they get to know her and she will get to know and like them. After that the big work begins. I feel so good about this now. I don’t know what will happen when the program is over. I may homeschool, but that is way down the road.

David will be working in Sudbury for the summer. So having the help of my mom and the therapist will be great. I will need it. I’ll be a single mother for about 4 months. He wants to keep his job with CBC radio Sudbury, we may need to go back since there is no work here. I don’t know. Also, working in Sudbury for the summer builds up his unemployment benefits and he will be able to come back here and collect EI for a while longer while Ruby is in the program.

Ruby is still doing well with the higher dose of chelation every weekend. She is still on 1500mg of OLE, but the yeast is not good right now. That is to be expected with antivirals and chelation. We just have to treat it and deal with it.

I love this picture of Ruby.

Ruby has been very interested in books lately and just recently started to colour!

Olive Leaf Extract

I restarted Ruby’s OLE a few weeks ago and once again she responded very well to it. I’ve decided to raise her dose to around 3000mg if I can. Right now the dose is at 1750mg. She is doing new things and just acting so ‘normal’ at times. Of course not when we’re visiting people, but that is from sensory overload. Depending on where we go. If it’s a place where she isn’t allowed to touch anything she’s usually not so great though.

So, I was going to wait until next summer for antivirals, but I think it’s time now. I do think the combo of antivirals and chelation will push her to recovery.

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I am password protecting some entries. For my regular friends who read, please ask me for the password. I just have things I want to keep private, but not to the people who understand.

Protected: Missing People

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Moved In

We have been here for a week now. It’s been really great being back in my hometown. We love this house. It’s a big character house and very well taken care of. We’re also saving $300 a month on rent here. I found an autism gymnastics for Ruby and an autism soccer. She has to be 5 for both, so next spring she can join. There seems to be a lot more here for autism than in Sudbury.

Anyway, we are on round 58 this weekend. I raised Ruby’s doses to 20mg. I’ve also added OLE back in at 1000mg and the screaming has stopped. I am going to get her up to 3000mg and keep her there for about 4 or 5 months. I have a feeling bacteria is the problem with Ruby’s behaviour.
So, I will continue to use this blog for Ruby’s recovery. Little stories about her progress, her supps, her chelation, her therapy and things that change. If you’re interested in my family blog where I write about both girls, our lives, vent about things, etc. Email me and I’ll give you the address!