Moved In

We have been here for a week now. It’s been really great being back in my hometown. We love this house. It’s a big character house and very well taken care of. We’re also saving $300 a month on rent here. I found an autism gymnastics for Ruby and an autism soccer. She has to be 5 for both, so next spring she can join. There seems to be a lot more here for autism than in Sudbury.

Anyway, we are on round 58 this weekend. I raised Ruby’s doses to 20mg. I’ve also added OLE back in at 1000mg and the screaming has stopped. I am going to get her up to 3000mg and keep her there for about 4 or 5 months. I have a feeling bacteria is the problem with Ruby’s behaviour.
So, I will continue to use this blog for Ruby’s recovery. Little stories about her progress, her supps, her chelation, her therapy and things that change. If you’re interested in my family blog where I write about both girls, our lives, vent about things, etc. Email me and I’ll give you the address!

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Last Supper With Friends

Last night we went over to Monica and Andrew’s. They are the girls honorary grandparents and just amazing people. They had a dinner for us with their kids (who are good friends of ours too!) and their grandkids. It was a great night.

Of course for Clara the playing and socializing comes easy. She loves Sam and Ava (Monica’s grandchildren) and she and Sam have fun because he closer in age. Ruby was amazing with the kids. For the first time she was almost normal in her socialization. She was initiating a chasing game with Sam and Ava and they were all running around chasing Ruby and laughing. She was rolling around on the floor with Ava for a while and she was just interested in Ava. Sam and Ava were even treating Ruby like a friend. Ruby asked her third question ever too! “Where’s kitty?” When she was looking for the cat.

I’m a bit sad because Ruby and Clara are just starting to get close with Sam and Ava. Sam and Ava are just starting to know us and they’re comfortable around us and now we’re leaving!

We have friends with kids in Windsor too and we’ll have to start all over again! Oh well. Great night anyway!

Tired

I am tired of the autism world. I’m tired of the autism recovery world too. I’m tired of my Facebook homepage being filled with information on how bad the Swine Flu vaccine is and how bad all vaccines are. I know this stuff already and I’m sick of reading it, it’s depressing and a constant reminder of what happened to Ruby.

I’m tired of people’s comments. Some mother’s of asd kids still have no idea what it’s like to have a moderate/severe kid. I completely surprised a friend a few weeks ago when I told her that Ruby had never had a professional haircut. She went on about how she couldn’t believe it. She couldn’t believe Ruby didn’t have a haircut as a baby. Who cuts a baby’s hair? Ruby’s hair fell out as a baby. So, she doesn’t quite understand that my child is nothing like her child and still at this point of recovery cannot get a haircut. I cut her hair. I was a hairdresser when I was 19.

There are so many levels to this autism world. I have been just staying in my autism world and trying to get Ruby out of it. It’s slow, slower than most of the kids I know. I just can’t talk about it anymore. I am going to keep blogging because this is mine and I can write what I want. But I am finished with the anger over vaccines and daily posts on Facebook about autism, autism, autism.

Much Needed Update!

Things are moving so fast right now that I haven’t really felt like blogging. But, it’s been a while so I should get some stuff down.

Ruby is doing well. I stopped the Low Dose Naltrexone because Ruby was getting up at 3 or 4 am every morning and staying up since we’d started the LDN. She was then taking long naps, like 4 or 5 hour naps and ended up in a bad routine. So about 6 days ago I cut out the LDN, it took about 3 days, but she’s back to sleeping through the night.

I’ve added some extra fatty acids and she is really responding well. I’ve also added some sublingual MB12 just to see if she needs the methylation. She’s been very vocal lately, very clear words, but some extra stimming and yeast which has been mostly gone until now. She’s tolerable though.

We are at round 53 of chelation. This round starts off her second year of chelation with about 2 more to go, maybe 3. She is at 16.6mg of both ALA and DMSA and tolerating them very well.

We move at the end of the month and we are so excited. I did not want to do another northern winter, the thought of it was very depressing. We have our house rented in Windsor and we’re just figuring out movers and which cable company to go with.

That’s it for now!

The Lemonade Award!

A wonderful woman, fellow blogger, fellow Canadian and friend Claire from LIFE WITH A SEVERELY DISABLED CHILD sent me this award. Thank you Claire! I love your blog as well and have more respect for you than words can describe.

The Lemonade Award is a feel good award that honors blogs that demonstrate great attitude or gratitude. Here are the rules for accepting this award: – Put the Lemonade logo on your blog or within your post. – Nominate at least 10 blogs with great attitude or gratitude. – Link the nominees within your post. – Let the nominees know they have received this award by commenting on their blog. – Share the love and link to the person from whom you received this award

Autism’s Bitch I love this blog! She tells it like it is and sometimes I feel like I could have written some of her posts!

Recovering Nicholas Another dedicated biomed mom recovering her child on her own and doing an amazing job! Her blog is filled with information to help everyone. She is also a personal friend.

A Question!

Tonight Ruby asked her first question! She was looking for her new box of crayons. I watched her walk around looking for it. She was saying ‘box’ to herself while looking. She walked up to me, put her hands out in that question sort of way and asked me ‘where da box of crayons?’

David and I both looked at each other in shock. She’s never asked a question. Very big milestone tonight! Something is working for Ruby these days. I had cut her Cod Liver Oil thinking she needed more Vitamin A and started giving her Vitamin A fish oils and Vitamin D3 separately. I saw nothing from that form of Vitamin A and a few days ago put her back on Cod Liver Oil. All of a sudden it seems to be working for her because words and new things are happening fast.

She also starting taking a new probiotic last week called ‘Mindlinx’. It seems to be wonderful for her. Tonight David took her to the park. She usually wants to be carried into the van. Tonight she walked down the front steps, climbed into the van herself and got into her booster seat HERSELF. What?!

Something is working and I am not changing a thing. Maybe we are coming out of a long stall from chelation? I don’t know, but I like it.

Moving

So much has happened this past week. We called around to find out about wait lists for the ABA/IBI program Ruby is currently on the list for. Like I wrote about before, she’s been on this list for a year now and waited for the assessment to get on this list for almost a full year. We were just told it will be at least another 18 months before she gets into the program in this city. We called my hometown of Windsor and if we move in the next couple of months, Ruby’s gets into their program in January or February! We are in shock!

So, looks like we’re moving. It’s an 8 hour drive and I have no idea how we’ll do it with Ruby and Clara, but it has to be done. Now we have to find a job for David and a place to live!

Ruby is doing okay. Not sure about the LDN. She is getting up in the middle of the night every night. This was supposed to only happen for a couple of days. She is also making weird noises again and just isn’t right. She’s smart, but weird right now. I can’t figure out what it is. We’ve completed 50 rounds of chelation and have about 100 more to go. I thought she’d be farther along at this point, but she’s not. Physically she is great, mentally not great. No language gains AT ALL. It’s frustrating to watch other kids I know advance and pass Ruby and Ruby just sort of creeps along.

Now I have to figure out why she is whacky again. I wish this would end.

Therapy Waitlist

We just found out that it will be another year or more before Ruby gets into to the government funded IBI therapy in this city. She’s already been waiting on this list for a year. So, now we are looking for the shortest list we can in the country. Not an easy thing. I am calling around and hoping it’s not the Yukon.

Clara’s Party and Round 49

We had a small party for Clara’s birthday yesterday. Everyone who came to the party are people we know very well and the girls see regularly. Usually when people come over Ruby gets hyper and nutty and just runs around the whole time. Or, she hangs on too tightly to people, too much hugging, etc. This time? Nothing. She was excellent. She wanted to interact in a normal way. She was interested in the opening the gifts, checking out the new toys and singing ‘Happy Birthday.’ She even blew out Clara’s candle. She was counting in french for everyone and just having fun. Everyone commented on how different Ruby was.

This round of chelation was excellent. I think adding the new probiotics has really, really helped her. I ordered Living Streams probiotics. They are liquid probiotics and really helping her. They cost a fortune of course and the shipping was $20 alone. But, worth it.

Even though she is doing amazingly well, I still cannot get what that teacher said out of my head. Isn’t that stupid? We have a meeting with the school on September 22nd. I am not sending her back there until this meeting. I think we’re looking at other schools or possibly homeschooling…uggh, bye what little freedom I had. Oh well, it will pay off in the future.